This Doctor Must Be Joking...

              So DH and I went to a doctor yesterday that specializes in High Risk Pregnancies.  We were instructed to go there by our RE.  When my DH and I arrived at the doctor’s office, we were a little anxious as to what she was going to tell us.  But I had all of my questions written down as to ensure I don’t forget what I wanted to as while in there with her full attention.  She started off telling me that she only has the results to my blood work and doesn’t know a lot about my medical history and my family’s medical history.  She first asked me about my sisters.  She then started asking me questions about my mother, her sisters, her parents, and even her grandparents.  Then she continued with questions about my father, his siblings, parents, etc.  Some of the questions I could answer.. some I could not.  The doctor seemed perturbed that I wasn’t able to answer all of the questions.  Umm . . I’m sorry that I don’t know whether my Great Grandmother ever had a miscarriage.  And I am very sorry I don’t know the full history on everyone’s blood work.  Anyways she then asked the same questions to DH. 

                Before I continue I should tell you that the reason our RE wanted us to go to this appointment was to see what dosage of Heparin, or Lovenox (another form of Heparin) I would be prescribed once I get pregnant.  This will hopefully help prevent a third miscarriage.

                After about 35 minutes of going through both of our medical histories as well as our family’s medical history she just sat there for a few seconds and stared at her paper that she was taking notes on.  She then looked up for her paper and said, “Well … I don’t know why you two were sent to see me.  I don’t believe you should be on either of these drugs, and I am confused as to what your doctor is referring to.”  So now, I am one, in shock; and two a little discouraged.  We were really hoping that she would tell us that she had something she could do for us so that we won’t have to go through another pregnancy loss.  Unfortunately that did not seem to be what was going to happen.  She then started saying things like, “Well, maybe I can send a list of tests to your doctor so that way she can have more information.”  Or, “I only have the results to 3 tests here, I sure hope there was more than that done, but who knows.”  Ummm, excuse doctor, my RE is ranked one of the top 3 Fertility Doctors in Boston.  She has her shit together.  Secondly, I can tell you that she has given me every blood test known to man.  I think there was a good 20 vials of blood when I was tested most recently.  That doesn’t include the 5 other PANELS of blood tests I have done.  So no, I don’t think she skimped out on any tests, and the reason you only have 3 of the results in front you is because those are the tests that came back positive.  Do you seriously think that she only gave me 3 tests, and all of them happen to be positive?  Don't you had a M.D.?  Don't worry, the best part of this appointment is coming up.  

So she told me that since I "have only had two miscarriages," she doesn't believe I should be on this protocol yet, and that when a 3rd miscarriage occurs, then she will put me on the meds.  Ummmm, excuse me.  If you think I am going to have a 3rd, why wouldn't we do everything we could to prevent that?  And then my favorite quote occurred, "I know your miscarriages were probably pretty upsetting, but do you know what is really heartbreaking?"  ((Ummm . . no, what?))  "If you were 35 and having these miscarriages."  Right because a miscarriage at 27 doesn’t hurt?  I’m confused.  Now don't get me wrong . . I am not looking for a doctor to hold my hand or rub my back when it comes to these topics, but please have a LITTLE compassion.  My RE isn’t mushy, or a “feel good” doctor.  She’s to the point.  We make a plan together and very matter of factly she tells me what is going to happen, or what has happened and then we figure out what the next step is.   But I have NEVER felt as if she was degrading the way I felt about something.  I know there are PLENTY of woman out there going through the same things that I am right now.  I also know that there are 35 year old woman going through this as well.  But this is MY reality.  I’m NOT 35.  I’m 27.  And I am allowed to think that this is heartbreaking.  I don’t dwell on it in my day-to-day living, but when they happened, they were heartbreaking.  

Needless to say, I will not be signing on with her as my high-risk doctor.

Otherwise, I am feeling very hopeful.  I am feeling very healthy right now, and I am down about 14 pounds since my last m/c and feel that this is a positive thing for my next cycle.  I know when the timing is right, it will happen.  And I can NOT wait for that!

 

                                    Faith can move mountains,

                                                Lindsay

More Results.

                So we went to the RE to get an update on our latest test results, and to see what our timeline would be for the next cycle.  I learned quite a few things at this appointment.  First of all, I am at high risk for a late 2^nd and 3^rd trimester still birth.  Because of the Factor V Mutation my blood has a high likelihood of clotting and stopping all nutrients etc. from getting to the fetus.  I am also at high risk of death due to clotting through delivery, and post-partum.  I will have to have a “High Risk” Specialty Doctor to follow me in addition to my regular OB throughout and post pregnancy.  I will be monitored on a more frequent basis throughout.  We were also advised to only implant 1 embryo this cycle rather than 2 (like we did on our 2^nd try).  Getting pregnant with multiples will highly increase the chances of serious complications.

                Needless to say we were a little shaken by all of this information.  I know that the thought, “should we just quit while we are behind,” passed through my mind as well as DH, but neither of us dared to say it out loud.  And of course, after the thought passed through it was never thought about again; it’s not an option right now.  I don’t think that would be a serious option until something went seriously wrong.  I think that the biggest realization is that we will not ever be getting to that point of “relaxing” throughout the pregnancy.  We thought that once we can finally STAY pregnant through that first trimester, we would be in the clear.  Obviously, that is not the case.  We will continue to keep plugging.  I have an appointment with a Hematologist (Blood Specialist) to figure out more in depth what the protocol will be.  They will be able to better understand what medications will help prevent some of these issues while TTC, during pregnancy, and afterwards.  Until then . . we will have to have a lot of patience, prayer, and wine of course. 

                                                                Prayers are welcome,

                                                                                Lindsay

One of those infertile days . .

I decided it was a good idea to get the ball rolling for our 3rd round of IVF. We haven't decided when to start yet or anything, we just want to know what to expect the 3rd time around. Because of the 2 previous failed attempts they are changing up the protocol on which drugs, meds, and vitamins I should be on etc. I haven't been on here for a while, and I thought I would just check in.

We have had an amazing Summer. The "Summer of Fun" as I have been calling it. And I am happy to report it has been just that. I have travelled for fun, travelled to volunteer, shopping trips, road trips, fun at the lake house, went to concerts, worked on my golf game as well as my tan at our beach club, started a new career that I am in love with, and got to see my best friend since childhood get married. We have had a blast.

I don't have too much to update you on in regards to our fertility situation, or the lack thereof. The one thing that my doctor recommended after my last miscarriage was an RPL panel. (Repeat Pregnancy Loss Panel) An RPL Panel is basically a panel of blood tests that check into my genetic makeup even more. DH already had these tests done back when he got his results back with such astonishing low counts, etc. Well when they did these tests on me, they found that I have a genetic blood disorder which they call a Factor 5 Mutation. Long story short, this is a blood clotting issue. The other issue they found is called M.T.F.R. (initials for a long word I can't even say, never mind spell it out) - but basically this causes my enzymes to not synthesize correctly. These two issues combined leave me at high risk for death in delivery. Luckily, they found this! Now they will ensure that they can do everything they can to make sure these issues do not affect my pregnancy or my health during delivery. Anywho, I am finding out what vitamins and meds I should start taking just to get my body fully prepared for this next cycle and to hopefully assist my body in being able to carry full term.

We are excited, hopeful, anxious, and relaxed all at the same time. Excited and hopeful because 3rd time could be the charm =). Anxious, because it is all such an unknown, and relaxed because everything happens for a reason, when it's time to start this next cycle . . we'll know. After our last miscarriage we said things like, "everything happens for a reason," or "this clearly wasn't God's timing for us," and lastly, "the right thing at the wrong time is still wrong." And yes, we both believe all of those things, but mostly we were saying these "cliché" sayings to make ourselves feel better about the sad situation we were dealing with. Well, wouldn't ya know, if I had went full term with this last pregnancy, we would not have known about these blood issues, and who knows if I would have made it. So we are very thankful that our doctors found out what they did and performed the appropriate tests to hopefully avoid any disasters.

The true reason I posted today . . I needed to. I had to get some of these things on paper and off my chest. I am having such an off day, and sometimes I just need to vent. It's tough to call people and vent about this (other than my DH) - nobody really knows what to say. People who haven't been through this before don't understand always. I have some really great family members who genuinely care and love to hear about all that’s going on, good and bad. They ask such great questions, and some have even gone as far as doing their own research and sending me some information that I may like or they think may help. I appreciate all of that so much. But sometimes a computer screen is where I want to vent. So between this post, hugs from DH, and keeping in touch with "The Big Guy" today . . I know tomorrow will be a better day.

Hope and tears,

Lindsay