Monday, September 16, 2013
So yesterday was my due date from my first pregnancy. When I first found out I was pregnant I immediately started planning “To Do” Lists, and invite lists for the baby shower, and furniture for the nursery, etc. I had pictures of every Pregnancy test I did, a secret wall on Pinterest with all of these great ideas for how to announce the pregnancy. DH and I finalized some names we really loved, etc. Anyways, after each of the miscarriages I would delete all of these things so that there was no evidence of a pregnancy after that. (Just in case I had a sad day and stumbled upon one of my many lists) Well, apparently I forgot to delete one thing. My due date reminder in my calendar. I ended up having a really great day, but when that notification randomly popped up on my phone that morning. . it was a little upsetting. It is crazy to think how different my life would be today if that was the case. Not saying that the life I have isn’t as good because I don’t have that baby yet . . because I truly don’t believe that is the case. I love our life. It’s Just Different.
Thanks for reading,
So DH and I went to a doctor yesterday that specializes in High Risk Pregnancies. We were instructed to go there by our RE. When my DH and I arrived at the doctor’s office, we were a little anxious as to what she was going to tell us. But I had all of my questions written down as to ensure I don’t forget what I wanted to as while in there with her full attention. She started off telling me that she only has the results to my blood work and doesn’t know a lot about my medical history and my family’s medical history. She first asked me about my sisters. She then started asking me questions about my mother, her sisters, her parents, and even her grandparents. Then she continued with questions about my father, his siblings, parents, etc. Some of the questions I could answer.. some I could not. The doctor seemed perturbed that I wasn’t able to answer all of the questions. Umm . . I’m sorry that I don’t know whether my Great Grandmother ever had a miscarriage. And I am very sorry I don’t know the full history on everyone’s blood work. Anyways she then asked the same questions to DH.
Before I continue I should tell you that the reason our RE wanted us to go to this appointment was to see what dosage of Heparin, or Lovenox (another form of Heparin) I would be prescribed once I get pregnant. This will hopefully help prevent a third miscarriage.
After about 35 minutes of going through both of our medical histories as well as our family’s medical history she just sat there for a few seconds and stared at her paper that she was taking notes on. She then looked up for her paper and said, “Well … I don’t know why you two were sent to see me. I don’t believe you should be on either of these drugs, and I am confused as to what your doctor is referring to.” So now, I am one, in shock; and two a little discouraged. We were really hoping that she would tell us that she had something she could do for us so that we won’t have to go through another pregnancy loss. Unfortunately that did not seem to be what was going to happen. She then started saying things like, “Well, maybe I can send a list of tests to your doctor so that way she can have more information.” Or, “I only have the results to 3 tests here, I sure hope there was more than that done, but who knows.” Ummm, excuse doctor, my RE is ranked one of the top 3 Fertility Doctors in Boston. She has her shit together. Secondly, I can tell you that she has given me every blood test known to man. I think there was a good 20 vials of blood when I was tested most recently. That doesn’t include the 5 other PANELS of blood tests I have done. So no, I don’t think she skimped out on any tests, and the reason you only have 3 of the results in front you is because those are the tests that came back positive. Do you seriously think that she only gave me 3 tests, and all of them happen to be positive? Don't you had a M.D.? Don't worry, the best part of this appointment is coming up.
So she told me that since I "have only had two miscarriages," she doesn't believe I should be on this protocol yet, and that when a 3rd miscarriage occurs, then she will put me on the meds. Ummmm, excuse me. If you think I am going to have a 3rd, why wouldn't we do everything we could to prevent that? And then my favorite quote occurred, "I know your miscarriages were probably pretty upsetting, but do you know what is really heartbreaking?" ((Ummm . . no, what?)) "If you were 35 and having these miscarriages." Right because a miscarriage at 27 doesn’t hurt? I’m confused. Now don't get me wrong . . I am not looking for a doctor to hold my hand or rub my back when it comes to these topics, but please have a LITTLE compassion. My RE isn’t mushy, or a “feel good” doctor. She’s to the point. We make a plan together and very matter of factly she tells me what is going to happen, or what has happened and then we figure out what the next step is. But I have NEVER felt as if she was degrading the way I felt about something. I know there are PLENTY of woman out there going through the same things that I am right now. I also know that there are 35 year old woman going through this as well. But this is MY reality. I’m NOT 35. I’m 27. And I am allowed to think that this is heartbreaking. I don’t dwell on it in my day-to-day living, but when they happened, they were heartbreaking.
Needless to say, I will not be signing on with her as my high-risk doctor.
Otherwise, I am feeling very hopeful. I am feeling very healthy right now, and I am down about 14 pounds since my last m/c and feel that this is a positive thing for my next cycle. I know when the timing is right, it will happen. And I can NOT wait for that!
Faith can move mountains,
Tuesday, September 3, 2013
So we went to the RE to get an update on our latest test results, and to see what our timeline would be for the next cycle. I learned quite a few things at this appointment. First of all, I am at high risk for a late 2nd and 3rd trimester still birth. Because of the Factor V Mutation my blood has a high likelihood of clotting and stopping all nutrients etc. from getting to the fetus. I am also at high risk of death due to clotting through delivery, and post-partum. I will have to have a “High Risk” Specialty Doctor to follow me in addition to my regular OB throughout and post pregnancy. I will be monitored on a more frequent basis throughout. We were also advised to only implant 1 embryo this cycle rather than 2 (like we did on our 2nd try). Getting pregnant with multiples will highly increase the chances of serious complications.
Needless to say we were a little shaken by all of this information. I know that the thought, “should we just quit while we are behind,” passed through my mind as well as DH, but neither of us dared to say it out loud. And of course, after the thought passed through it was never thought about again; it’s not an option right now. I don’t think that would be a serious option until something went seriously wrong. I think that the biggest realization is that we will not ever be getting to that point of “relaxing” throughout the pregnancy. We thought that once we can finally STAY pregnant through that first trimester, we would be in the clear. Obviously, that is not the case. We will continue to keep plugging. I have an appointment with a Hematologist (Blood Specialist) to figure out more in depth what the protocol will be. They will be able to better understand what medications will help prevent some of these issues while TTC, during pregnancy, and afterwards. Until then . . we will have to have a lot of patience, prayer, and wine of course.
Prayers are welcome,